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Reflections on a misdiagnosis. June 9, 2009

Posted by Natasha in Life.
Tags: , , ,

I wrote here about Mum being diagnosed with Non-Hodgkin’s Lymphoma.

Thankfully, in my sojourn from the blog, it was discovered that this was not actually what she had.

She presented with some scary symptoms – blood work showing all kinds of crazy, run down, lethargic, niggling cough, chest x-rays showing shadows, Full body CT scans showing what looked all the world like stage 4 metastasis, in her kidneys, thyroid, around her heart and all over her major organs. Being sent in for a lung biposy to determine what kind of Chemo schedule she would be put on was horrendous.

When the results of the biopsy came back, we were preparing ourselves for the worst. Unbelievably, the words she said were not only completely different from what we were expecting, but also strangely familiar. She told us she had sarcoidosis, which Mr G had been diagnosed with less than a fornight earlier.

From Wikipedia: a systemic disease that can affect any organ. Common symptoms are vague, such as fatigue unchanged by sleep, lack of energy, weight loss, aches and pains, arthralgia, dry eyes, blurry vision, shortness of breath, a dry hacking cough or skin lesions. The cutaneous symptoms vary, and range from rashes and noduli (small bumps) to erythema nodosum or lupus pernio.

Sometimes, the Worst Possible Thing, doesn’t happen.

They’re both ok now. Mr G remains on steroids, and notices symptoms if he doesn’t take time, Mum has been off hers for months, but still has a nasty skin lesion on her head.

Still way, way preferable to the alternative.



1. Sarah - June 13, 2009

Hi I think this is a fantastic blog, keep up the good work…

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